Quotation Human, Soheil. 2021. Contextuality and Intersectionality of E-Consent: A Human-centric Reflection on Digital Consenting in the Emerging Genetic Data Markets, co-located with 6th IEEE EuroS&P. 1st International Workshop on Consent Management in Online Services, Networks and Things (COnSeNT 2021), co-located with 6th IEEE European Symposium on Security and Privacy (EuroS&P), Vienna, Austria, 07.09.-07.09.


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Abstract

Consent plays an essential role in different digital regulations, such as the European General Data Protection Regulation (GDPR). As a result, obtaining consent from data subjects (e.g. end-users or end-customers) are widely practised by many data controllers (e.g. service providers, companies, or organisations). Considering the importance and the widespread practice of consent-obtaining in different domains, critical and interdisciplinary studies of the current consent-obtaining mechanisms are highly needed. In this paper, we first shortly discuss an interdisciplinary human-centric perspective to consenting and propose that, among others, the contextuality of consent, as well as the potential intersectionality of consent, should be carefully considered in the development of consent-obtaining mechanisms. Then we elaborate on the distinction between “consent to personal data processing for commercial purposes” and “consent to personal data donations intended for research” in the field of direct-to-consumer genetic testing (DTC-GT). We show that based on our human-centric perspective, the contextuality and intersectionality of consent are sometimes overlooked in the current DTC-GT services, which are of considerable significance in the emerging genetic data markets. We hope that this paper can contribute towards the development of human-centric, accountable, lawful, and ethical (HALE) sociotechnical information systems dealing with consent and privacy management as fundamental building blocks of a sustainable digital economy.

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Publication's profile

Status of publication Published
Affiliation WU
Type of publication Paper presented at an academic conference or symposium
Language English
Title Contextuality and Intersectionality of E-Consent: A Human-centric Reflection on Digital Consenting in the Emerging Genetic Data Markets, co-located with 6th IEEE EuroS&P
Event 1st International Workshop on Consent Management in Online Services, Networks and Things (COnSeNT 2021), co-located with 6th IEEE European Symposium on Security and Privacy (EuroS&P)
Year 2021
Date 07.09.-07.09
Country Austria
Location Vienna

Associations

Projects
Human—Digital:Sustainability
People
Human, Soheil (Details)
Organization
Institute for Information Systems and New Media IN (Details)
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